Tag Archives: Georgia

I don’t want to kill my kid, I’m just really fashionable.

I’ve been combing the Internet for an indoor swing for Connor now that winter is settling in. It has actually been in the 40s here in Georgia, otherwise known as “Oh My God I’m Gonna Freeze To Death Like The Original Pilgrim Settlers” weather here in the south. At least we have Chick-Fil-A and Waffle House so we won’t starve. His spurt in motor skills was well-timed right before the part of the year where I climb underneath 12 blankets and don’t get off the couch for five months.

His newfound independence reminds me of the Terminator films. Everyone was all, woo hoo! Skynet! Oops. Apocalypse. You see, Connor, too, has become self aware and he will soon be on an unstoppable path of destruction.

IMG_5672

But apparently an indoor swing is not attainable for a reasonable price once you factor in the cost of hardware SOLD SEPARATELY. ALWAYS. SOLD. SEPARATELY. Everything I need is solely manufactured for kids under 25 lbs.

On my fruitless quest I was reminded why I hate home design blogs.

700_brooklyn-kids-swing-02

Originally featured on Martha Stewart (surprise), shared on other design sites.

Yeah. Let’s install a trapeze in the living room. This is modified from my initial reaction which involved some four letter words. I became intrigued…what other impractical and deadly joys are out there that I’m ruining Connor’s life by not providing?

wallter9

Original credit here

Okay. This is a cute use of space and it’s apparently really the boys’ bedroom. So this is actually a lesson in parenting. It is apparently possible to have an elevated surface, two kids and no homicide attempts. I only have one kid so I can’t speak as a parent, but I can speak as a sister, and I SOOOOO would have pushed my brother off that on a daily basis. And I would have gotten away with it, too. Just like the time I gave him a bloody nose and claimed I was trying to stop him from running into the street. He wasn’t.

This is hailed as a “vibrant and lively” kid’s bedroom:

3-formal-room

Credit here

I agree. If your kid is Don Draper.

enhanced-buzz-13323-1365178521-1-1

Credit here

I mean….I don’t….what?

enhanced-buzz-9572-1366740466-15

Buzzfeed

Just the other day I was telling Chris we need a little more excitement in our lives in the form of trips to the ER.

506a3eded9127e30da0011d0._w.540_s.fit_

Credit here

Seven years I spent yelling at students to get down when they were climbing on things they shouldn’t. Could have saved my breath since apparently parents are indifferent to broken limbs.

PirateShipBedroom1

Credit here

Again, words fail me. I assume Johnny Depp himself comes to install it with the $60,000 price tag?

700_two-images-kids-sliding-poles.jpg

Credit here

Your daughter is never too young to learn the art of pole dancing…

327324906012279467_834b25e5c7cc

Credit here

Sing with me! The best part of waaaaaking up, is dying an untimely death after getting your foot stuck in a drawer!

kids-dream-bedrooms-31

This one’s pretty cool, I just think it was stupid to do the room in white. Getting your kid’s blood out is going to be a b****.

700_sliding-staircase-for-kids

Spinal cords are overrated. Besides that’s why we keep prisoner clones in the basement.

lilliput-Play-Homes-a-19999-Playhouse_1Lilliput Playhomes

Most of the people who buy this playhouse end up living in it. But the kids get the master.

Advertisements

“You’ll feel more rested if you get up at the same time every day.” LIES!

I’m having a terrible time keeping up with the blog now that I’m doing some other writing for meager pay to support my eBay habit. I’m trying, I swear! If I could just become a morning person, I could get so much more done. But almost 17 months of consistently getting up at 8 a.m. and I still can’t function properly until 10. Grover taunts me every morning with his chipper, go-getter attitude.

The big news is that Connor just started crawling the other day while we were in Blowing Rock, NC with my parents. He’s not doing it consistently, still doing a lot of commando crawling, but at least we know he can do it now. We are very excited. The cats are not. He’s also now demanding far too much attention after having Chris’ parents stay with us for the half a week leading up to the trip, and then another half week with my parents.

I think Connor would really enjoy having pet ducks in our backyard. Chris disagrees.
I think Connor would really enjoy having pet ducks from Blowing Rock in our backyard. Chris disagrees.
Swinging with Grandpa in Blowing Rock.
Swinging with Grandpa in Blowing Rock.
Meeting the giant doggie at Mast General Store in Boone, NC.
Meeting the giant doggie at Mast General Store in Boone, NC.
The dog makes a great rug.
The dog makes a great rug.

He also just added aquatic therapy to his regimen.

photo-92

photo-93

We are so loving how attentive he is to what is going on around him these days. He had a delightful meeting with the Chick-fil-A cow recently, and also cheered up some not-so-enthusiastic waitstaff at Texas Roadhouse during their obligatory hourly line dance. His clapping and enthusiasm had the embarrassed, Man-I-really-need-the-money staff smiling.

I like ladies. I like music. This is some sweet line dancing.
I like ladies. I like music. This is some sweet line dancing.

photo-89

photo-90

photo-91

We had an appointment with his neurologist this morning and I requested we try name brand seizure meds (Trileptal and Keppra), in place of the generics since we continue to have breakthrough seizures. Many people swear by them as generics can vary in potency so much, so I’m hoping it makes the difference. I’m sure insurance will be delighted. But after they just sent me the private info of three people by accident…well, let’s just approve it, seeee (in gangster voice).

In other awesome news, as Connor was approved for the Katie Beckett Medicaid Deeming Waiver, we were then also able to apply for HIPP. which is a Medicaid program that helps pay your private insurance premiums in cases of serious health issues, as it is in their better interest to make sure you keep you private insurance, than lose it and resort to full Medicaid. We were approved, and this allows us a lot more income to put towards any other needs we want to meet for him. And my wine. I’m so thankful that Connor’s Early Intervention program people have been so good at making us aware of these programs. So if you have a kid in EI, make sure you have applied for Katie Beckett, and if you have done that, make sure you apply for HIPP (I don’t know what the variation is from state-to-state. I know we are lucky that such services are easily attainable here in Ga compared to what I hear about some other states, particularly in the midwest).

As for the house, I kid you not, we told our realtor toward the end of the month that we were taking it off the market July 31. We finally got an offer on July 27. So this house is under contract and we are under contract on our new house, as well. We will finally have a room we can dedicate to Connor’s mess–I mean, toys.

Don't feel bad! You've been a good house.
Don’t feel bad! You’ve been a good house.

I swear this has been the most humid Georgia summer of all time, but others have told me I’m insane and it’s always this bad. At any rate, I’m ready for fall and to wear my new scarf that my sister-in-law Donna made for me from Chris’ old shirts.

The King of Izod has some extra space in his closet now.
The King of Izod has some extra space in his closet now.

Also, two events I want to make sure TSC families are aware of in the area:

298465_187704037963818_1579148_nOn Saturday September 8, we are having a family bowling event. Cost is $10 per person, which includes shoes and unlimited bowling. Food will be provided. Details here.

On Thursday October 10, we are having an educational meeting on financial planning for your children with special needs. Details here.

 

Walking for a Cure and Trying to Employ My 14-Month-Old

I’m still here, even in the midst of all the awesome guest bloggers I’ve had so far this month for TSC Awareness (still accepting guest posts). You might remember me from such posts as Bite Me, United Healthcare or Bite Me, Medical Billing Department That Won’t Call Me Back.

The last week has been really busy. I’ve been doing some freelance writing, which has been immensely rewarding in all ways but financial. But if I keep it up, I’ll have that Italian villa by the time I’m 127. I write for the parenting and education divisions of an online media company. No seriously, I write about parenting in, not one, but two locations. Makes you rethink your Google searches, huh?

The Georgia Step Forward For a Cure took place on Saturday May 18 at Marietta Square. So far it has raised $70,000 and counting–thank you Dee and Reiko for organizing this year after year. I was also named as the new chair for the Atlanta/North Georgia TS Alliance, which I’m pretty excited about. Sarah, a reader who has been following along with the guest bloggers, asked me if I would be there. I told her to look for the obnoxious yellow shirts. She found me.

IMG_3909

Connor is doing well; he’s still progressing, although it can never be fast enough when your kid is delayed. We just hit 14 months, and we’re hoping he’ll crawl soon. He can hold the position if we put him in it, it’s the moving part that is the problem. He can move backwards when he’s on his stomach. The problem is, he doesn’t ever want to be on his stomach. He will expend more energy trying to flip himself over when I have him wedged in on both sides, than he will to move a couple feet. He can also stand with minor support, but again, we have to put him in the position. He doesn’t pull himself up yet. I’m also desperately hoping to hear some consonants soon. He has mastered uh, and quite frankly, at this point he can add a ffff and a kkk and I’ll be the one parent that’s thrilled.

We recently increased his meds when it seemed some sort of seizure activity was breaking through again. It helped, but I still occasionally see his eyes go up and linger a few seconds, or he’ll stare off to the side with tightly pursed lips. They don’t seem to have a lingering effect like previous seizures though.

His delays do seem to have created the very player of son I swore I wouldn’t ever raise. I’ve never formally announced his health issues in music class, although I also don’t hide it. Some people have become aware as the music teacher is also his music therapist, and they have overheard us talking. I also wear my TSC shirts to class. But some may actually believe that I am such an incredible disciplinarian, that I have actually trained him to never leave my side (easy to believe when you’ve never seen him try to empty his entire bottle into his belly button). So there he sits, very cool, very “you come to me, I don’t come to you.” And the girls, oh yes, they crawl right over. They can’t help themselves. He’s so James Dean, if James Dean traded his cigarettes for music sticks.

I’ve also been looking into just how young kids can start gymnastics because it would be a shame for Connor to ever lose the ability to do this:

968950_525852977473808_645167364_n

We might be looking at a career gymnast. Of course, he has also shown an interest in dentistry.

IMG_3991

And Salvador Dali impersonation.

IMG_4001

Tanglewood Farms…and serious matters, too.

Does anyone know how long the ear-shattering shrieking phase lasts? Asking for a friend.

Connor is continuing to do well. Since mastering sitting at the beginning of January he has increased his range of reach around him, and pulls himself back to sitting from positions from which he would have toppled right over not so long ago. His flexibility is frankly disturbing. But when one wants toes, one will have them.

photo-6

If assisted into a crawling position he can maintain it and lift an arm to reach for a toy. He can also hold himself in a standing position. The key is to now help him achieve these positions independently. Oh, and move while in them. My lower back longs for the day.

The good news is that we still haven’t seen any eye-rolling seizures since February 10. The bad news is that I suspect he may be having occasional absence seizures upon waking. I’ve counted maybe 6 or 7 instances in which shortly after waking up, he purses his lips tightly and stares off to the side. They aren’t very long–maybe 20 seconds or so. They don’t seem to have any lingering effect on him, but it’s still frustrating. We get these little windows of no seizures, and then something changes. We see the neurologist again on the 24th so we’ll discuss it then. Of course, this is much better than what was going on before.

As I mentioned, his current mode of communication is high-pitched shrieking. It’s kind of funny until he keeps it up for half an hour. Or we’re in a restaurant. He’s otherwise so well behaved in public, but his love of his own voice shattered some mimosa glasses at brunch the other day. Hear it for yourself. But don’t click that at work. People will think you are seriously weird. And then watch this just because it’s funny to see how much he loves seeing himself.

I’m having trouble gathering my sarcastic thoughts since I’ve been watching CNN coverage of the bombing at the Boston Marathon all day, so here are some happy pictures of our trip to Tanglewood Farms, an awesome petting zoo of miniature animals in Canton, Georgia.

IMG_3282

IMG_3287

IMG_3290

IMG_3291

IMG_3297

IMG_3303

IMG_3304

IMG_3307

IMG_3311

IMG_3313

IMG_3316

IMG_3317

IMG_3323

IMG_3329

IMG_3332

IMG_3337

The only downfall of the weekend was that Connor exhibited some signs of allergies. After we had been at the farm for a bit, he began to rub his face into us again, and his eyes seemed itchy. This also happened the day before at a friends birthday party. Pollen? Like Daddy? Orrrr….

IMG_3274

was it the pony at the party? Pollen or farm animals? Pollen counts were at record highs (or so I’m told. Pollen only affects me as far as irritating me by getting all over my car and porch rocking chairs). Time will tell…