From a fellow TSC mom.
Today we were having a good day. Dac was busy playing
with her toys, she had a snack and was her usual smiley self.
Then this happened.
you see Dac has Epilepsy but it is more than a word. This is my child this disease is affecting and many more children and adults. If you are hesitant to donate for research, advocate for treatments, support ,educate or to even pass a law
look into her eyes and explain why.
See the blood trickling from her mouth? She bit her tongue. Not a pretty sight
you want to see. Imagine if this was your child.
This is not the picture of my daughter i really want to share. I prefer this one
With Epilepsy you do not get to choose.
You have to watch your child in helpless fashion endure it and
to pray they come through it.