I remember when once a week I used to think to myself, “It’s closing time already?” Now, once a week, I think to myself, “Don’t you know to bag the cold stuff together?” Oh the difference a few years and a move to the ‘burbs can make. My husband and I live in the Atlanta area, but just far enough north that my friends refer to it as Tennessee and mock me for the days I said I would never move OTP (if you’re an Atlantan, you know what that means). He is in finance, and I am a former teacher (to be a teacher again? Who knows. I miss teaching, but not the PC paperwork garbage that comes with it). Now I write education and parenting articles for sites such as eHow, Livestrong and Modern Mom and I’m the chair of the Atlanta/North Georgia Tuberous Sclerosis Alliance (opinions expressed in this blog are my own and not representative of the Alliance). I have a journalism degree from the University of Georgia and a master’s in education from Oglethorpe University. I currently stay home with our son Connor, who looks exactly like my husband in spite of the fact that it was I who gave up drinking for 39 weeks and 3 days to bring him into this world. We often joke that we will be the first couple in history to appear on Maury to find out who the baby mama is. I battled anxiety and depression for several years, until I discovered a magical drug called citalopram. I believe that coffee and wine are essential elements of life. I’m passionate about travel anywhere, but I’m partial to Asia.
Our son was born in March of 2012 and diagnosed with tuberous sclerosis complex after he started having seizures. Until then, we had never even heard of it. Most people we meet haven’t, yet it is more common than Huntington’s, Lou Gehrig’s disease and cystic fibrosis. So what is it?
Read this to find out. He’s had seizures, infantile spasms, brain surgery at four months, daily medications, a medical diet, occupational and physical therapy, speech therapy, aquatic therapy and music therapy.
Connor is an awesome happy toddler, although he does have developmental delays. We are optimistic that he is going to kick TSC’s butt. There is no cure, but some people can lead normal lives with it. Our main goal is to give him every opportunity to do so.
So this is life with an unexpected curve. I hate the curve, but somehow life has remained good so far.
Interested in contributing?
If you have a TSC story you would like to share, I’d be happy to publish it here. One of my passions is spreading the word about TSC. It’s a little known genetic disorder, but research into the issues it causes benefit a far larger population than just TSC sufferers. If people knew more about it, they would realize that advances in TSC research can help all people who suffer from various cancers, epilepsy and autism.
If you have another idea as a contributing writer that you feel is fitting for this blog, I also welcome those ideas for review–mom stuff, how-to articles, travel (my other passion!), etc. If you have a blog or website you would like to promote, you can include that with your contribution. I will need to review your link in advance, and it must be to a personal blog or personal site. I do not accept links that are not fitting with the theme of the blog or are clearly intended purely for SEO.
e-mail Becky at email@example.com
- Brain Tumors Shrunk In Children With Tuberous Sclerosis Complex (medicalnewstoday.com)
- Bcureful Helps Fund Promising Tuberous Sclerosis Complex Research Project at NYU Langone Medical Center (prweb.com)