Parenting, Tuberous Sclerosis

Purple and red go together like Bert and Ernie.

Leave a comment
“Bert + Ernie for Marriage Equality” / Toy Sto...
“Bert + Ernie for Marriage Equality” / Toy Story / SML.20130327.IdealHusbands.Remix (Photo credit: See-ming Lee 李思明 SML)

IMG_3121Connor does not own a stitch of purple and Chris wasn’t on board with me dying his hair purple to match mine, so I recruited friends and family to wear purple on his behalf yesterday  for Purple Day and epilepsy awareness. Connor has epilepsy due to his brain tubers from TSC. That being said, we have not seen any seizure activity since Feb. 10.We didn’t do too shabby considering we were in stiff competition with the sea of red washing over Facebook due to the Supreme Court hearings on gay marriage. It was bad timing for me as red is definitely my color and I have a ton of it. But since that is a two-day affair, today I got to discover that my still purple hair goes great with a red top. Politics, schmolitics. I’m in it for the fashion. And who knows. Maybe someday, people will figure out that you can’t claim to have Jesus in your heart, and in the same breath, call someone a fag and condemn them to hell.

My mom rocking the layered purple look.
My mom rocking the layered purple look.
Arianna strikes a pose in a very fashionable ensemble.
Arianna strikes a pose in a very fashionable ensemble.
Giovana took her purple to the court house (where she's an interpreter, not a criminal).
Giovana took her purple to the court house (where she’s an interpreter, not a criminal).
Mieka represented in Canada.
Mieka represented in Canada.
Sara claimed she was having a bad face day, but she's never needed an excuse to send me a picture of her chest.
Sara claimed she was having a bad face day, but she’s never before needed an excuse to send me a picture of her chest.
Asma doesn't believe in wearing purple pantsuits to court, but eye shadow is another story (lawyer this time, still not a criminal-officially).
Asma doesn’t believe in wearing purple pantsuits to court, but eye shadow is another story (lawyer this time, still not a criminal-officially).
Sondra and Jareyl rocked some mother/son purple.
Sondra and Jareyl rocked some mother/son purple.
Rachel doesn't do purple clothes, but she does purple flowers.
Rachel doesn’t do purple clothes, but she does purple flowers.
Claudia, Isabella and Arianna made it a family affair.
Claudia, Isabella and Arianna made it a family affair.
Juliette was stopping traffic in her purple...oh my god, my captions are so stupid and yearbooky.
Juliette was stopping traffic in her purple…oh my god, my captions are so stupid and yearbooky.
Yuri only allowed her art students to use purple crayons all day. Right?
Yuri only allowed her art students to use purple crayons all day. Right?
Thomas knows the importance of accessorizing.
Thomas knows the importance of accessorizing.
Sleepy is modeling his human sister's former onesie.
Sleepy is modeling his human sister’s former onesie.
Lili represented in Barcelona, Spain.
Lili represented in Barcelona, Spain.
Danita took her purple to the bank. No really. That's where she works.
Danita took her purple to the bank. No really. That’s where she works.
Ann went to sleep dreaming of purple sheep.
Ann went to sleep dreaming of purple sheep.

8942_10151376666009372_1542950621_n

530260_10151611468786289_1389567161_n

 

 

Related articles
Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

Gravatar
WordPress.com Logo

You are commenting using your WordPress.com account. ( Log Out /  Change )

Google photo

You are commenting using your Google account. ( Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. ( Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. ( Log Out /  Change )

Cancel

Connecting to %s