Many mother’s experience TSC on a personal level daily. They’re home with their child that they’re terrified to put in daycare or attending appointments that are almost daily. But then there’s husbands, whom are hard at work. Always making sure there’s a roof over their families head, food on the table, and the health insurance that their jobs bring in is a sheer blessing.

Last year I wrote our story, “Wyatt’s story”, but this year I wanted to do something different.  I decided to do a Q&A with my husband and look at TSC from a dad’s perspective.

1) What went through your head when you first heard the doctors tell us Wyatt had TSC?

“I had no idea what it was or what it meant. I knew he had tumors in his heart and I was scared for him.”

 

2) As a working dad, what has been the hardest part of your journey with TSC?

“Being at work when you have to take Wyatt to the hospital and appointments all the time. I wish I could be there for him. And I wish you didn’t have to do it alone.”

 

3) What is your biggest fear with TSC?

“That Wyatt will always struggle with things for the rest of his life and that I can’t fix it.”

 

4) If a child was newly diagnosed and their father reached out to you what would you tell them?

“Find the best hospital to take them to and do your research.”

 

5) What has been the happiest moment you remember with JJ and Wyatt since Wyatt’s diagnosis?

“Seeing them play together and smile with each other.”