Really? I finally get Accredo out of my life, and now my insurance makes me get Onfi from mail order Optum Rx, even though it’s available locally. And what do they do? Take forever to process his upped dose on a new prescription and then just throw it on a UPS truck NOT OVERNIGHT, but 3-5 business days SIGNATURE REQUIRED, without coordinating a delivery date with me, all for it to be delivered two days after we run out. So here is my morning making phone calls coordinating getting an emergency supply. I DESPISE using mail order pharmacies. I started the process of his refill as we opened the current bottle. I thought an entire bottle of Onfi would provide sufficient time for a refill.
When I established on the phone this morning that the vague 3-5 business days would fall into the “too late” category I was transferred to someone who would help me get an emergency supply locally. Well, okay. I can deal with that. Until I realized that actually just meant I handle everything as usual and would have to do what I was already planning to do out of desperation. Call local CVS and beg for mercy. Call neuro and beg for emergency prescription to be sent over. Wait for everyone to coordinate everything and deal with initial insurance rejections and getting override codes.
Not to worry. CVS has assured me they will hook me up with emergency doses as needed because the prior approval needed to give me this “emergency” dose actually takes three days.
It sounds so pretty doesn’t it? Have your medication delivered right to your door! Don’t ever do it if you have a choice! My heart medication — the ones I’m going to need from all this in the future — will probably only be available through mail order.
To CVS Caremark Pharmacy that currently handles Connor’s vigabatrin: We have something special. Please, please don’t ever break up with me. My heart couldn’t take it. No, seriously. If you fail me, too, my heart might give out. I’m begging you to keep loving me.
On another note, I had a voicemail the other day from someone at Express Scripts in regards to my blog about Accredo. They are looking into the issues I shared. The day got away from me yesterday and I didn’t get a chance to call her back, but I appreciate that it is getting some attention there. I need to get some coffee and breakfast in my system to return the call. Oh, and Connor’s permission.
Mixed Up Mommy 
Please oh please keep blogging on this issue. We have been with Curascript for vigabatrin and hadn’t had any issues, in fact, quite happy with them, until this year. (I hear they have finally merged with Accredo, yes, that was my heart stopping you heard) The last three months orders have all had issues, slow response times and finally, it happened, too late. Excuse after excuse, my favorite being that the order was held up due to ‘payment issues’ when our insurance company, without whimper of complaint or ‘prior auth’ pays 6500 dollars a month. How is this an issue and why does it fall on my son to pay the price for your ‘procedures’? So sick of the patient coming last. Considering offering chickens for payment like the old days so we can go back to doctor patient and family without this ridiculous ‘safety net’ between us all. Over it.
Sing it Sister!!! Sing it loud!
Thanks for reading and commenting! The person from Express Scripts that called me and left a voicemail was very apologetic and said they were looking into my file and the issues I had. I hope that something really will be done. The issues are too prevalent and ongoing!
I really hope so. I can honestly say i was very happy with them until the last two months. It seems so straightforward to me, track the order, refill the order, send the order. They complicate it unnecessarily forcing a phone call every month and running it through so many steps on their end. Oh, and why oh why aren’t they open on weekends?! Seriously, they are supposed to be a ‘specialty Pharmacy’ why can’t they do Saturdays like ‘normal’ pharmacies?
Your blog and bad publixity gets results as they compete for business. Also emailimg the top guy works for me every time . Miracles happen when i mention going viral on fb too. I now have optum and they screwed up my bpressure drugs and address and sent to wrong address . Made me irate , not impressed with them either. They dont seem to care either . Love your blog gets results .. Send them a copy to ceo
Cheers, Susan Givng thanks in November for blessings in my life!
I agree! Even though I have blogged about it, I’ve never thought of threatening them with blogging about it!