Connor is still sick. He seemed to not be running a fever after Thursday, and though he slept a great deal, he was somewhat active on Friday. But Saturday and Sunday he slept. And slept. And slept. He was also congested. I was hoping he was just working his way through the cold, but the amount he was sleeping was getting quite worrisome. He actually had his first sleepover at my parents Saturday night. He had a few bursts of energy there, but he definitely wasn’t himself. I took him into the pediatrician first thing Monday morning where he was diagnosed with bronchitis. Oh, and he had a fever again. Had his fever come back, or did my ear thermometer royally suck? I checked when I got home, and it told me his temperature was perfectly normal, even taking into account a margin of error. Fantastic. He was probably running a low-grade fever all along. He’s always warm anyway. He inherited that from his dad and I assume they are both secretly descended from the shape-shifting Native American tribe of Twilight’s Jacob. I was super cautious, always taking it from both ears multiple times and making sure mine was in the normal range for comparison because I know user error can be an issue with those things. At any rate, I do NOT recommend the ear thermometer from Safety 1st. I dug out his old NICU thermometer and stuck it under his arm. That method, which is supposed to less accurate, was far closer to the mark. And we bought a second rectal one for future situations. Apologies in advance, Connor. Fancy technology has never been my friend.
Since he was still doing so crummy, by Monday I did figure there might be another underlying issue, so I went in expecting to be told he had an ear infection. His ears were great. It was his chest that was terrible. It wasn’t his usual pediatrician, but one of the male doctors I hadn’t met before. Sorry to stereotype, but I prefer female doctors most of the time. Generally speaking, they put off a more empathetic vibe and listen more. (And yes, I have experienced the EXACT opposite with both sexes as well). Men often seem abrupt and more rushed. So I didn’t talk with him as much as I would with his regular doctor. But I was a tad hesitant that he prescribed antibiotics. I was ready for them when I thought it was an ear infection, but I thought, isn’t bronchitis viral? Yes, I should always ask, advocate and all that, I know…I just didn’t ask enough this time. I read up on it afterward, and antibiotics aren’t typically considered helpful for bronchitis since most of the time it is viral. But perhaps he was ruling out other possibilities, preventing another infection, being super cautious, so I am giving them. This is my first time dealing with Connor being sick in a manner that is not TSC/seizure related so I’m learning. Again.
The weirdest thing about all this is that illness and fevers typically cause a spike in seizure activity. Instead of a spike, we have seen a major decrease. I’ve caught two since this all started. He usually has 1-3 most days. A bright side, I suppose. If I keep him in viruses and covered in snot, maybe we can be seizure free?
He is better today. Still very tired, but he did summon the energy to throw a puzzle all over the floor in the playroom this morning. That room has stayed spotless since Friday. And he’s staying awake to watch the TV more today. Yesterday he slept ALL day.
But we did get his first sleep over at Grandma and Grandpa’s done. That was the first night he’s been away from both of us. I went to DC earlier this year, and Chris has had a couple of business trips, but it was weird to sleep in the house without him. When I woke up in the middle of the night, I checked to make sure the cats were breathing just so I felt like I was serving a purpose. But I did sleep until 10:15. It was AH-MAZING! No alarm at 8 for meds. I felt like I was 25 again! No… 30. At 25 I would have slept past noon. Chris and I used our free night to see Catching Fire (can I please be Jennifer Lawrence?) and eat at Marlow’s Tavern.
Here I present a montage of Connor’s varied sleeping positions at our home and my parents’ house:
And a few bursts of energy:
Aww, poor baby. He does look a little peaked, but still adorable. Bethany’s seizures never got worse when she was sick either. I think because she always stops eating when she’s sick. Could be because her body goes into that starvation mode and makes more ketones. Kind of like the ketogenic diet. Could be a sign that the diet will help!
That’s interesting! I hadn’t thought of that theory. He definitely isn’t eating much.