
This is Hunter and he is eight years old. I met his mom, first at a music class she attended with her younger child, then I saw her again at the pool where Hunter and Connor both receive aquatic therapy. One day I realized I hadn’t seen them in quite some time, only to meet mom and dad again in a Facebook group. They had moved to Colorado to obtain treatment for Hunter after several seizure medications, VNS and the ketogenic diet failed him.
They have finally found an effective treatment in the form of medical marijuana–20 minute seizures are down to two minutes and he went six days straight seizure free for the first time in eight years –but now they can’t come home to Georgia. And they aren’t the only ones. Many families have left everything behind to move to Colorado to obtain access to medical marijuana. Charlotte’s Web is a well-known strain featured in the CNN special with Dr. Sanjay Gupta and created by Realm of Caring. It is low in THC so the kids do NOT get high, and it is in the form of an oil, so they do NOT smoke it. Sometimes people even have to leave other legal states so that they can get the form of marijuana their child needs. New Jersey is such an example. Though medical marijuana is legal, Gov. Chris Christie has made it exceptionally difficult for families to get what they need.
From the Huffington Post: “See this is what happens. Every time you sign one expansion, then the advocates will come back and ask for another one,” the governor proclaimed during a press conference from his statehouse office. “Here’s what the advocates want: they want legalization of marijuana in New Jersey. It will not happen on my watch, ever. I am done expanding the medical marijuana program under any circumstances. So we’re done.”
Remember that as he sets his sights on the Oval Office.
Georgia Governor Nathan Deal also opposes it.
These families want to come home. And I don’t want to one day face the same decision they have if we can’t get Connor’s seizures under control. If you are interested in the legalization of medical marijuana in Georgia, please check out this group.
Really powerful story. My heart always goes out to patients who are desperately looking for some relief. It is why I became an advocate for MMJ in the first place. Thank you for this post.
I would love to send happy mail to Hunter for his birthday and holidays. I’ve been doing this for over 14 years. Is your Connor okay? If he has an illness, I would love to add him to my list too. My e-mail address is: thebee711@hotmail.com. It makes me so happy to be able to give a child a smile!
Sincerely,
Bonnie Ermilio