Tag Archives: speech therapist

Could today BE any more annoying?!

Read the title in Chandler Bing’s voice.

Today has just been a fail from the get go.

It shouldn’t have been. Today was the first day Connor slept until 8 in the last two weeks. I know my mommy friends aren’t going to ooze with sympathy when I’ve been blessed with a kid that has always slept great and let me sleep until 8 every day, but I can’t do this “anywhere between 5:30 and 7” thing. When I don’t get sleep, I forget what mugs are for.

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But back to today, I wake up when Chris leaves for work, but wondrously roll over to go back to sleep BECAUSE CONNOR ISN’T AWAKE! But instead of blissful sleep, I’m met with another hissing fit from Emma the cat because our new family member who joined us this past weekend, is once again, trying to be buddies with her.

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Connor loves Rosie, Rosie likes Connor despite the fact he thinks her bed was made for two, and Rosie even likes the cats. The cats DO NOT like Rosie.

So Emma won’t shut up and Rosie won’t leave her alone, so I finally get up and put Rosie in the crate. Back to bed…drifting…the sound of Emma puking on my bedside table. Awesome.

I’m in and out of sleep until the alarm, but thanks to the pet patrol, it wasn’t very restful.

Connor’s speech therapist came at 9. By the time I woke up I had developed a migraine and wasn’t in the mood to make breakfast, so I force fed Connor, since he’s never hungry on this diet anymore. Got some in his mouth and much on his face.

Then I was antsy through speech because I had been dragging earlier and still needed to get ready to go to Connor’s EEG. So I ran around like crazy between the time his therapist left and we had to go. I let Rosie run around the backyard in the meantime since I didn’t have time to walk her. But when she tried to come back inside, there were legs hanging out of her mouth.

My very first opportunity to hold a dying baby rabbit in my hands. Lovely.

Off to the EEG, which was one of the more challenging ones we’ve had since Connor is so mobile and not down with restricted movement. He was not thrilled with the process.

The EEG was just to check up on things. It was only an hour so there really wasn’t an expectation to catch a seizure, even though unfortunately we’ve been having more breakthrough seizures lately despite the early success of the diet. Connor started to refuse olive oil, and even though I’m now using mayo, butter and cream cheese for his fats (along with the staple whipping cream), we haven’t been able to get the same degree of control back, even though it is still better than pre-diet. We did actually attempt to get him to sleep during the EEG since waking up is his big trigger, but he wouldn’t even though he was almost out in the car on the way over. Naturally, he passed out as soon as we left. AND had a seizure upon waking.

We came home and I was running around swiffering, putting dinner together in the Crockpot and other chores. Once again, I let Rosie play in the yard. I had placed the dead bunny through the fence to my neighbor’s yard. Yeah, I know that makes me sound like a jerk, but their yard is a mess. I figured the body would be eaten by the snakes I assume live in their six feet of grass. Apparently I didn’t push it far enough because I got to do round two with prying it out of Rosie’s mouth. This time I had to do it with sticks because the rabbit was a lot worse for the wear.

At that point I realized I’d not eaten today, so I had three pieces of cheese.

Then I spent some time doing normal special needs mommy stuff like calling hospitals and making them bill Connor’s secondary insurance since you have to force hospitals and many medical practices to do EVERYTHING that you would think would just be part of normal operations.

And the topper–for now–came when I pulled the laundry out of the dryer. One shirt with strange oily spots, two shirts with strange oily spots…Yep. Chapstick in the dryer. If you’ve never done that, you simply won’t understand.

But on the bright side, it is now after five. Hello, my good friend Jack D.

In all seriousness, I’m way behind on updating about Connor. Lots of good stuff coming soon.

 

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Speech Therapy Giveaway From PresenceLearning!

Unknown-1I am really excited about today’s giveaway! I was contacted by PresenceLearning, a company that provides live online speech therapy services for K-12 students. You can check out their web site here. I was not familiar with the company so I contacted a former co-worker of mine who is a speech therapist to see what her thoughts were. It turns out, she contracts with them now.  I would have loved to take them up on their offer for a free trial for Connor so I could give you a first hand account, however, with Connor being so young, and the fact that his speech therapy sessions are very hands on and he frequently tries to crawl away…not sure that would work for him.

Some details from PresenceLearning:

PresenceLearning is the leading provider of live online speech therapy services for K-12 students and is now offering online occupational services as well.  PresenceLearning strives to match the right therapist with the right child regardless of location. The company has partnered with school districts to offer web-based access to a growing, nationwide network of over 300 highly qualified speech language pathologists (SLPs) and occupational therapists (OTs) via live videoconferencing combined with the latest in evidence-based practices. PresenceLearning is also expanding their offering to serve parents and guardians of children with special needs.

What you get with the giveaway:

PresenceLearning will provide:
   • Trial of live online speech therapy services. Two 30-minutes sessions per week for 2 weeks (a total of 4 sessions, 30 min each) 
   • PresenceLearning will provide winner with headsets and webcams and do the tech checks and make sure they are all set up technically. When they are done with the trial, they do not need to return the headset and webcam.

What the winner will need to provide to PresenceLearning:
 • The states where the services will be taking place so we can make sure we have a licensed SLP to serve them in that particular state.
   • Parent’s name, state of residence, phone number and best time to reach, email, child’s first name, age/grade of the child and what the situation is with the child (i.e do they have a specific speech–language issue that is being addressed in school IEP or otherwise?)
After we have this information we will put you in touch with Aaron Skiies from PresenceLearning and get the winner connected with a clinician — one of their top SLPs who will talk to them about how it works and what their child’s needs are. This SLP will be the one to schedule the actual dates and times for the sessions.

How to enter:

Leave a comment expressing your interest in winning the speech therapy trial and the age of the child you want it for. if you’re comfortable sharing, please tell us why you’d like to try it…I will not require that particular detail out of respect for some people’s desire for privacy. I will randomly draw a winner on Wednesday October 23. I will try to contact winner by e-mail, as well as posting here. If I do not hear from you within four days, I will select a new winner.